Great news to report...Evan is coming home tomorrow! A bit of coordination had to be done with a clinic in Tucson during the day, but he's coming home with oxygen. The decision was made for him to have an apnea monitor. Dr. Vedock was pushing for him to just have a saturation monitor, but the doctor at the Tucson clinic (Dr. Morgan) decided the other way. So, we won't know on a daily basis how his O2 saturation levels will be. The plan is to set his O2 level around .225 constantly and let him "grow out" of it. He's been floating between .1 and .2, so they say keeping him at that slightly higher level all the time will be fine. At his weekly check ups they will check his saturation levels to see how he's doing. We have to be at the hospital at 9:30am to meet with someone from respiratory. I assume it will be to go over what we have to do.
They have officially diagnosed Evan with Bronchopulmonary Dysplasia (BPD). It's something that will take time to heal. He'll be going to the Arizona Respiratory Center (ARC) for monitoring.
A company called Apria is setting us up with the oxygen. They have to come to the house tomorrow and set up the big tank. Evan will have a smaller tank for travelling. He did great in his carseat (he slept for about 4 hours in it), so driving to Tucson won't be a problem. We'll have to take him to the ARC in Tucson for periodic monitoring. I also set up his appointment with Dr. Vedock for Thursday. Needless to say, he's going to be seeing the doc probably weekly. During those appointments they will be taking blood to check his electrolytes also.
This is our last night of sleep, so I guess we should enjoy it!
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Chronological age: 2 months 1 week and 3 days
Adjusted age: 2 days
SVRHC Charges: $1,832.74
Running Total: $368,001.03
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1 comment:
Excellent guys. Get baby Evan out of there before he really does pick up something. Have fun with him.
Love,
Shari
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